In March of 2008, we discovered our daughter, Katy, suffered from the effects of a deletion on chromosome 6. After hours and hours of research on our own, we discovered that there was almost no information on our child’s condition. Almost no research. Almost no idea what we could expect for our daughter.

We created this site to try to help others like us compile as much information as possible. As our daughter continues to grow, so do our hopes.
And hopefully, so do hers.

To every disadvantage, there is a corresponding advantage. – W. Clement Stone