We’ve arrived in Rochester, MN, to 41 degree weather and a very stuffed-up little girl.

Tomorrow, Tuesday, is our first full day of appointments. We’ve settled into our hotel for the week and Katy and Mommy are laying down on the bed  – Mommy trying to take a nap while continually turning down Yo Gabba Gabba on Katy’s iPad – and Katy, laying beside her continually turning Yo Gabba Gabba back up to full volume.

We’ve taken our first tour of downtown and the Mayo complex and it is an impressive site. You can tell Rochester understands what’s important in their city – the Mayo Clinic. Nearly every building in downtown is connected either through a vast system of underground “Subway” walkways or the above-ground Skywalks. The hospital complex itself is probably the most beautiful medical center I’ve ever seen, complete with granite/marble/stone work everywhere, including in the cafeteria, and to add to the ambience, we passed a lady playing a grand piano in an atrium. I have to find out if those are truly a whole series of Chihuly glass sculptures in the entranceway directly from our  hotel. (Just looked it up and yes, it is a Chihuly. I don’t want to even know what that thing is worth.)

Katy’s allergies have flared up big-time over the last two days and we have a lot of snot running down her little nose and a lot of coughs from the stuff running down her throat. She seems perfectly happy to lay around the hotel room right now (as does Mommy). Although, knowing my wife, that isn’t going to last for long.

Now that we’re here the question of “Just what are we hoping to find out?” has reared it’s head. I’m not really sure. We expect to get the results of Katy’s second chromosomal micro array tomorrow to see if they were better able to determine her exact deletion. After that, who knows? Will that information get us any further than we already are? Will they have anything more they can tell us? We really don’t know. Now that we’re here, I feel really unprepared for this. Just please give us something that will help my little girl.

We’ll update everyone as soon as we can. Hope for the best.

todd