Brief Update

One of the things about working in a retail environment is that once you hit November, your job pretty much takes over your life. Such is the way these last two weeks have gone. My apologies for the lack of information – especially for any information on the pathology report after Katy’s surgery last week. […]

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Updated Info and a Special Thank You

There are times, I’m sure, over the past few years where I’ve been busier in my life; but I’m having a hard time thinking of when. My apologies for not updating this with all the info from Mayo. I’ve been working on the post and on the video and it should be ready this weekend […]

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Lot to Share… Coming Soon!

Yes, Katy’s little journey has been all over the map since we got back from Mayo. And we have a lot to share with you once I get the opportunity to sit down and edit a bunch of video and proof some rough drafts of some articles. All I’ll say for now is “Check back […]

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Search for Chromosome 6 Deletion Answers at Mayo Ends… for Now

Today was neurology day at Mayo, evidently. We met with two different neurologists, one from the adult side of things and one from pediatrics. What did we find? What did we do? Not much new, and nothing much changed. It’s been a recurring theme from our trip up here – with the exception of our […]

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Deciding on Another Surgery – Mayo Day 3

Our scheduled day off turned out to be probably the most important day of our trip. I can’t begin to tell you how impressed Shel and I both were with Dr. Skinner, the physiatrist we met with today. Katy received by far the most exhaustive physical exam she has ever received. (She wasn’t too happy […]

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Mayo Starts to Shine – Day 2

Exhausted. That pretty much sums up today for Katy and for us. Two straight nights of sleep deprivation – last night purposefully done, the night before caused by a fit of coughing – have left all three of us wiped out. But not before the power of the Mayo Clinic started to show through today. […]

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News from First Full Day in the Mayo Clinic

As I glance back into the “sound asleep” portion of our hotel room at my sleeping little girl and wife, I’m struck by just how long of a day this has been. Like I said in an earlier post, Katy’s allergies were bugging her the whole way up here and have continued through today. This […]

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Bringing Out the Best in Others

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If Katy is in the right mood, she has this innate ability to bring smiles to the faces of everyone she meets. And she does it in the simplest way possible… she says “hi!” Today, after we walked throughout the “Subways” and over the “Skywalks,” we let her climb out of her wheelchair and play […]

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First Impressions of the Mayo Clinic

We’ve arrived in Rochester, MN, to 41 degree weather and a very stuffed-up little girl. Tomorrow, Tuesday, is our first full day of appointments. We’ve settled into our hotel for the week and Katy and Mommy are laying down on the bed  – Mommy trying to take a nap while continually turning down Yo Gabba […]

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Soccer and Special Moments

Last Saturday, Shel, Katy and I headed out to Lindenwood U to watch Jenni and Whitney and the rest of the Lions play in a women’s soccer game. For those of you who haven’t watched the last couple of films I’ve posted, Jenni and Whitney worked with Katy during her first two weeks playing in […]

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