I just need some help. I have a son that has chromosome 6 deletion. i can not find much information on 6 deletion. and his doctors say they do not know much about it either i just need advice and understanding.
my phone number is 405-207-0480
While Katy’s experience will almost definitely be different than your son’s, I would highly recommend you look into joining the Chromosome 6 Facebook group at https://www.facebook.com/groups/chromosome6/ . It is an invitation only group that is completely private to members. You can ask anything you want without worrying about what some of your other Facebook friends might think. You might search for Elizabeth McPherson to make sure we get you involved. We have more than 700 members in the group now that are all dedicated to supporting each other with issues stemming from any problems with Chromosome 6.
Hope that helps. If you’d still like me to call you, just let me know.
I just need some help. I have a son that has chromosome 6 deletion. i can not find much information on 6 deletion. and his doctors say they do not know much about it either i just need advice and understanding.
my phone number is 405-207-0480
Pasley-
While Katy’s experience will almost definitely be different than your son’s, I would highly recommend you look into joining the Chromosome 6 Facebook group at https://www.facebook.com/groups/chromosome6/ . It is an invitation only group that is completely private to members. You can ask anything you want without worrying about what some of your other Facebook friends might think. You might search for Elizabeth McPherson to make sure we get you involved. We have more than 700 members in the group now that are all dedicated to supporting each other with issues stemming from any problems with Chromosome 6.
Hope that helps. If you’d still like me to call you, just let me know.
Todd