Chromosome 6 Hope Ribbon

Want to Help? Support new information for C6 families in our fundraiser

February 11, 2012

It has been far too long since we updated this site. So much has happened involving our family and Katy that many times updating this site just seemed to be one more “chore” that I just didn’t want to deal with at the time. I’m really disappointed that I let it get that way.

Chromosome 6 Disorder Support Merchandise

All profits from the sales of this merchandise goes towards C6 family support through the organization Unique.

With that said, however, there has been a big development lately. Our chromosome 6 support family on facebook has continued to grow larger and larger, and one of the projects that suddenly gained traction earlier this month was a place for C6 merchandise could be sold for families and friends looking to show support. Well, that site is now live and ready. All profits from these sales are going towards sponsoring new information brochures specifically on chromosome 6 disorders from an organization called Unique. This is one of the few organizations actively supporting families dealing with the effects of rare chromosome disorders. (Also, look carefully at the logo, recognize it?)

If you’re interested, follow this link. We have everything from t-shirts and sweatshirts to iPad sleeves on sale. And everything is going to a cause that can truly help a lot of families that can’t find help anywhere else.

Thanks for your help!

Been missing a healthy dose of Katy? Here’s a video taken just a bit ago at her favorite place in the world right now: the playground at a local mall.

{ 4 comments… read them below or add one }

Dave Couch February 12, 2012 at 3:54 pm

I build playgrounds . Everywhere. Manufacture as well customize. Indoors and outdoors. Any ideas or special needs you can think of that would increase or ease your daughters fun we would like to hear to help her or other special needs children. Michelle , I admire you and your husbands strength with both the challenges of family and running your own business and am impressed with how great a family you have

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Mom February 12, 2012 at 4:46 pm

Glad you’re back online. She is such a darling!!

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kylie May 29, 2012 at 1:04 am

Hey There,
My name is Kylie. I live in Cairns, Queensland, Australia. My daughter (Violette) has 6p21.33-6p21.32 and 6p21.32. She is 20 months old. Violette has significant developmental delays, Benign Congenital Hypotonia (low muscle tone) and her head is abnormally large with a very large and open fonatnelle (at least 2 inches diameter) She doesn’t speak yet and has only just started crawling on her hands & knees in the last few weeks. We live in a remote area and there aren’t any specialists or help available for this. Can we connect to chat? This is all new and I don’t know what to think, say or do 🙂 Your blog is comforting

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Todd May 30, 2012 at 10:52 am

Kylie- Glad you found the site! And I’m also glad to see you found the chromosome 6 group on facebook as well. Please let me know if there’s anything I can do to help. My email is oswald.todd@gmail.com.

todd

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