Blog

I know it’s been a long time since I updated this site with information. Let’s chalk it up to just how active our little girl has become! We celebrate our little girl’s birthday on Wednesday and I think it’s important to look back at just how far she’s come. As I was weighing my options […]

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Our journey as a special needs family has had amazing highs and astonishing lows. Through it all, I’ve experienced the joys of a family growing stronger together in the face of a true unknown with Katy’s chromosome deletion. Even with all of that strength, we are still faced daily with obstacles and emotions that we […]

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This past weekend, Katy celebrated her sixth birthday. One of the things that sneaks up on you when you have a little one that can’t stand on her own is that you don’t get to see just how tall she is getting very often. Consequently, I guess, it’s just shocking to find that your little […]

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This weekend, Michele and I were truly honored to be asked to speak to a group of 5th and 6th graders about our experience as a family raising Katy. One of Michele’s clients had done an interview with us last summer and knew the story of Katy’s chromosome deletion. She asked us to tell the […]

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On Tuesday, December 28, Katy had her right heel cord lengthened at Shriner’s Hospital here in St. Louis. She has been in a cast just below her knee ever since. And, once again, our concerns on how she would react to a cast, on how she would deal with the pain, on pretty much everything, […]

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Dreams that You Dare to Dream

December 19, 2010

I read a post this week about how some people get the chills when they listen to certain musical pieces. I’m one of those people. What’s interesting about this to me is that I never gave a thought that some people didn’t get chills when they listened to special musical numbers. Never crossed my mind. […]

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I took Katy to see her urologist this week for her final follow-up after her March 31 surgery for reflux. Thankfully, everything seems to be functioning correctly – for now. So, no more tests involving filling Katy’s bladder with 3 liters of liquid and x-raying her for a while at least. (Thank God.) But there’s […]

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Katy + Whip Cream = Laughs. Lots and lots of them.

Bad Day? Just Add Whip Cream

December 5, 2010

Like every family dealing with a child with special needs, we have our good days and we have our bad days. We also have days like today that feature both. We ended up at the cell phone store today, trying to get two phones fixed/replaced. For whatever reason, today was the day for Katy to […]

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Brief Update

November 14, 2010

One of the things about working in a retail environment is that once you hit November, your job pretty much takes over your life. Such is the way these last two weeks have gone. My apologies for the lack of information – especially for any information on the pathology report after Katy’s surgery last week. […]

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